lunhs cancer

The good news is that my brain surgery recovery is coming along really well. I�ve even been approved to start driving again, so Jason is taking me out for some driving practice this weekend. However, life with metastatic lung cancer continues to keep me on my toes. I�ve been in seemingly endless doctor appointments, and the plan now is to do targeted radiation to the area surrounding what was removed from my cerebellum. I am also moving to a new targeted medicine, Lorlatinib. Hence, the endless doctor appointments. I had my penultimate appointment for the Entrectinib trial, and I am currently going through the washout period in preparation for the Expanded Access Protocol trial for Lorlatinib. As you may recall from my Crizotinib washout, the withdrawal from these powerful meds is remarkably painful. Every muscle in my body is aching, even muscles I didn�t know I had. On Monday I have the radiation planning appointment. There will be 5 radiation sessions, every other day, beginning the...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 27: Dave Bjork, survivor "It�s all about relationships." Twitter: @ bjork5 Who is Dave? I am a lung cancer survivor, and I am a passionate advocate for cancer research and education. Professionally I�m the Vice President of Development for the National Foundation for Cancer Research in Bethesda, Maryland. In my role I advocate for funding important research projects led by scientists at places like Massachusetts General Hospital (MGH), MD Anderson, Dana Farber and so many others. Among the researchers that I am very vocal about, and that are supported by my organization in the area of lung cancer, are Drs. Daniel Haber and Alice Shaw at MGH, and Dr. Jin Jen at Mayo Clinic. What is your connection to lung cancer? I was diagnosed with lung cancer. I was 34 years old, married with 3 young boys age 5, 3 and 1, and I had never smoked. I received amazing treatment at Mass. General Hospital by thoracic surgeon Dr. Doug M...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 25: Roz York Brodsky, survivor. "There is much more hope than there used to be" Eleven years ago Roz York Brodsky was diagnosed with non-small cell, giant cell, locally advanced lung cancer. This is a very rare form of lung cancer. At the time there wasn�t the social media support and people like Peter Jennings and Dana Reeves were dying from lung cancer. She was terrified. The upper right lobe of her lung was removed. She was only 46 at the time. Afterwards, she began regular check ups. A year ago, she was diagnosed with stage 1 non-small cell adenocarcinoma lung cancer. Luckily, it was caught early due to her on-going regular check-ups. At this point they removed the middle right lobe of her right lung. She currently has stage 0 but with pre cancer cells in her left lung, so is facing another possible surgery. Roz has been able to resume a normal life to an extent. ...continue reading...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 24: Jeff McManus, caregiver and advocate. �I used to be a loner before meeting Cara.� Twitter: @ Jeff3263827 Jeff was a caregiver for his wife, Cara, who passed away in April 2015. She only survived 20 months after being given her stage IV lung cancer diagnosis. They met in 2006 and quickly became good friends. They would have been married for 4 years in June of that year. Jeff confessed to me, �I used to be a loner before meeting Cara. She brought me out of my shell and we started hanging out with friends.� Jeff has a PhD in biology and works full time in a research lab. He enjoys his work and his coworkers. In his free time he likes playing trivia with his friends, going to Indie rock concerts, and cooking. He and Cara both loved cooking and often made meals together. He also likes to stay active by riding his bike, another fun activity him and Cara did together, lifting weights, and playing basketball. ...continu...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 23: Rachael Willeford, Lung Cancer Advocate and Co-chair of Lafayette (Louisiana) Free to Breathe "Everyone deserves hope!" Twitter: @ PollywogPrinces Rachael, what is your connection to lung cancer? Four members of my mom's side of the family have died from lung cancer. Two of them were my mom's best friends - her brother and her cousin. They both were ever present in my life. In 2012, I learned that someone had started a fundraiser called Free to Breathe in my town, and I decided to participate. Afterwards, I volunteered on a committee and would eventually become the co-chair of the event a few months later. After I learned that my mom's cousin, (who passed away in 2009,) and her father, (who also passed away from lung cancer in 1978,) had virtually the same survival rate, I dove headfirst into advocacy. I now focus on patient and community education and outreach, locally, with Free to Breathe . ...co...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 22: Sandy Arlin Jauregui-Baza, survivor �Life doesn�t have to end after diagnosis. It can be a wake-up call to start making YOU your biggest priority in life.� Who are you?   I�m a 32 year-old �kid� from Los Angeles, California with an amazing husband and two lovely fur babies: Gambit and AmaDablam. I love everything about the great outdoors, from camping, hiking, jogging, kayaking�. well, you get it   What is your diagnosis history?     I was diagnosed a few months short of 30, at age 29, with NSCLC. At the time of diagnosis, I�d already developed multiple lung nodules in both lungs and lesion along my spinal column; in other words, I was considered a stage IV patient. ...continue reading...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015   Day 21: D. Ross Camidge, MD, PhD, Director of the Thoracic Oncology Clinical and Clinical Research Programs, University of Colorado   "Progress will come from changing the way we think about cancer " What is your connection with lung cancer? The first lung cancer patient I remember was called John and he was a plumber in Edinburgh in Scotland. He had never smoked and was one of the first people to go on an EGFR inhibitor in a trial and had a great and long lasting response. He was the nicest of people and introduced me to all his tradesmen friends and I will be forever grateful to him for getting me on the inside track for fixing up my �fixer upper� at the time. We didn�t know about EGFR mutations at that point but it was enough for me to see the potential and the need for breakthroughs in this common serious disease. Now, 15 years later, I run the lung cancer program at the University of Colorado Cancer...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 20: Denise Cutlip, Lung Cancer Survivor "I saw the hopelessness in my family�s eyes when I was diagnosed and I want to help alleviate that for others." Twitter: @dennycee Her connection to lung cancer- Denise is no stranger to lung cancer. Her father passed away when she was just 15 from mesothelioma from working in boat yards and the plastic industry. She then lost her mother to adenocarcinoma lung cancer in 2006 shortly after being diagnosed. So when Denise was diagnosed on 10-10-10 with stage IV adenocarcinoma, her first thought was �Oh crap! What can I do to live longer than 6 months?� She was given 15 months to live and she felt like she lost all of her independence. She did some research and later connected with other survivors on Inspire. Learning and sharing with others in her position is what gave her courage and hope to carry on. Even though her family just wanted her to rest, she did not want ...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 19: Anne Gallagher, Lung Cancer Survivor "I feel like I�m here to take care of others" Anne Gallagher spends her days as a patient navigator at Willamette Valley Cancer Institute in Eugene, Oregon. She is a valuable team member dedicated to all kinds of cancer patients, keeping a close eye on them to ensure that they receive great care in all areas of health. Her professional career in healthcare began 11 years prior in Women�s Health. The transition to oncology came shortly after Anne�s own cancer diagnosis in 2002 at age 25; clearly a shock and turning point in her life. Diagnosed with early stage neuroendocrine lung cancer, surgery was recommended. Specifically, removal of two lower right lobes.  ...continue reading...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 18: Gail Lemaire , Lung Cancer Survivor "I have 30% lung capacity and I'm still laughing my head off!" Gail, what is your connection with lung cancer? �I am a survivor of lung cancer five separate times over the past 23 years. I have also had breast cancer twice, and thyroid cancer twice.� Gail is also an advocate for others with lung cancer. Why do you think you�re still alive???!!! �First, I have the most unbelievable husband in the world. He is there for me every minute of every day. It seems doubtful that I could have made it through all of these difficult illnesses - cancer, surgery, treatments, and thousands of tests, etc., without his love and support. Next, I believe in the power of positive thinking. I want to LIVE my life, because I am the luckiest, most blessed, happiest, most contented woman you could ever meet! I�m thankful for every minute of every day that I�m alive. Also, God keeps me...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 17: Kim Ringen , Lung Cancer Survivor "Everyone kept blowing off my concerns as typical pregnancy symptoms." Twitter handle: @KimberlyRingen Who is Kim Ringen? Tell us a little bit about who you are, aside from cancer. Funny I can�t get away from cancer even in my former life�.I�m a veterinarian oncologist . I love being a veterinarian. I wanted to honor the human animal bond when picking a specialty - I chose oncology for 2 reasons. #1 I wanted to help further honor that bond by helping guide pet owners through what is considered one of the darkest days for their companions. #2 I find the intricate cellular backbone that drives cancer biology so intriguing from a science standpoint. This has been one of the hardest parts of my former life to let go� being a veterinarian is not just a job it becomes part of who you are..regardless if you are able to practice of not. I love skee ball. If I walk into a restaurant or...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 16: Kelli �Cat� Joseph, Survivor �If there was ever a time in history to get lung cancer, that time is now.� Kelli, tell us about yourself. I�m a 48 year old lung cancer survivor, currently NED (no evidence of disease). I am a wife to a gorgeous, caring, patient husband, and we are parents to a beautiful, loving, smart teenage boy who has been so resilient throughout the ups and downs of this cancer ordeal. He is amazing. I�m also a business owner. I have a bar called The Cuckoo�s Nest. That sounds like a recipe for being very busy. Is it fun to be a bar owner? Yes it is, and it�s even more fun now that the bar is smoke free. When I think of how much second hand smoke I breathed in from the age of 17, I�m very happy that smoking in my bar is now against the law. ...continue reading...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015   Day 15: Dr. Lucy Kalanithi, Lung cancer advocate and former caregiver �Lung cancer happened to Paul, but it�s something we did together.� Twitter handle: @ rocketgirlmd Who are you? I am Paul Kalanithi�s widow, I�m a doctor, and I�m Cady�s mom.  My husband was Paul Kalanithi, a neurosurgeon and writer who was diagnosed with stage IV lung cancer in 2013 and who passed away this year at age 37. Paul and I met and married in medical school at Yale and moved to California together 8 years ago to start our residencies. When he was diagnosed, our top priority (apart from the best medical care) was to clarify what was truly important to us and help him seek meaningful time. That included going back to work and, for him, writing (including the essay �How Long Have I Got Left?� in the NYT and working on a memoir). We�d always thought we�d have a child together at the end of residency and when he got sick, it was abou...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015   Day 14: Dr Anne-Marie Baird, Lung Cancer Researcher and Advocate �Lung cancer can affect anyone, anywhere.� Twitter handle: @BairdAM What is your connection with lung cancer? Both my grandmother and aunt died from the disease. My aunt died while I was researching lung cancer at university. What does your typical day look like? I am usually in the lab or labland (as I call it) and am active on the Twitter feed #LCSM. Outside of the lab, I keep an eye out for dangerous Australian wildlife! What is something we might not know about you?  ...continue reading...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 13: Diane Legg, survivor and advocate �I turned her loss into advocacy.� It was March of 2006. Dana Reeves had just died and I was reeling. As a young woman with lung cancer, I�d hitched my star to Dana�s, and her loss felt terribly personal. But then I happened to pick up a copy of the Newburyport Daily News. Inside was a story about a young mother of three with lung cancer; Diane Legg. I found her phone number online and called her that afternoon. We chatted a couple more times but our plans to have coffee somehow never materialized. ...continue reading...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 12: Karen Loss, survivor �I am living with lung cancer, not dying from it.� Twitter handle: @ CancerTrek What is your connection to lung cancer? I will celebrate my 3rd anniversary since my lung cancer diagnosis on Thanksgiving this year. When I was originally diagnosed, I was already a nearly 16-year survivor of concurrent primary cancers of the uterus and ovaries. In January, I will celebrate my 19th anniversary after those diagnoses. I am currently undergoing my 3rd treatment regimen. First, I had a combination chemotherapy comprised of Taxol, Carboplatin and Avastin. That was followed for about 6 months by Avastin maintenance therapy. When progression began again, I was put on my second tier treatment of Taxotere. After that shrunk my tumors once more, I went off all cancer treatments and stayed off for about 15 months, though I still received CT scans every three months. The last three scans showed ongoing slow gr...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 11: Kelly Shannon, survivor "We need to show the world who we are." Nearly 4 years ago, Kelly Shannon was diagnosed with Stage 4 non-small cell adenocarcinoma with the KRAS mutation (more commonly associated with people who have smoked). Kelly was a 35 year old non-smoker when she was diagnosed in January 2012, and since then has endured numerous types of treatments from traditional chemo to 2 separate clinical trials. There aren't many options for someone with the KRAS mutation, as there are with and EGFR or ROS-1 mutations. She is now a 39 year old single mother raising two children, ages 5 and 7 , while jumping from treatment to treatment in order to buy time for a KRAS treatment to come out. ...continue reading...

PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 10: Brendon Stiles , MD, Health Care Provider "Even a diagnosis of advanced lung cancer is not a death sentence." Twitter handle: @BrendonStilesMD Who is Brendon Stiles? Tell us a little bit about yourself. Ten years ago, I lost my father to lung cancer . After training at Memorial Sloan-Kettering Cancer Center and New York-Presbyterian Hospital, I am now an Associate Professor of Cardiothoracic Surgery at Weill Cornell Medicine, New York-Presbyterian Hospital. I operate on and care for patients with lung cancer . I have written extensively about lung cancer screening and the management of early lung cancer. I am also a basic science researcher, trying to characterize a new therapeutic target for lung cancer . I am on the Board of Directors and Medical Advisory Board of the Lung Cancer Research Foundation. In addition to being a surgeon and researcher, I consider myself to be a patient advocate. What made you...

Lung Cancer Awareness Month 2015 Day 9: Andy Trahan, survivor "If you have lungs, you're at risk for lung cancer." A 35 year old father of 3, husband, and stage 4 lung cancer survivor. Diagnosed 2-14-13 Andy has been involved in advocacy by speaking to Representatives and Senators to share his story. Along with LCA he helped convince them to sign the bill for Low-Dose CT as a screening option. He and his wife, Leslie, also got a lung cancer specialty license plate in their state of Louisiana. He occasionally connects with other survivors that need support. His dad does a lot of research and connects with other survivors too and his sister created a Facebook page �Andy�s Team.� His brother has helped Andy with his work when he�s not up to doing it himself. Everyone has come together and has a role in the family to support Andy. ...continue reading...

Lung Cancer Awareness Month 2015 Day 8: Jill Feldman, Lung Cancer Advocate and Warrior, in that order "Nobody fights alone" Jill Feldman, Lung Cancer Advocate and Warrior, (in that order.) Who is Jill? She is the 13-year-old granddaughter who lost two grandparents to lung cancer within weeks of each other. She is the daughter whose father died at 41 years old of lung cancer, nine months after her grandparents died. She is the daughter whose mother died at 54 years old of lung cancer. She is the niece whose aunt died at 56 years old of lung cancer. She is the former president of LUNGevity who was diagnosed with lung cancer, during her term, at age 39. She is a wife and mother of four teenagers ages 18, 17, 15, and 13 years. Jill has been a lung cancer warrior for 6+ years. ...continue reading...