It�s been a rough year.
For those of you dear readers who have been following my ongoing health drama, you may recall that in December 2017, a new little brain met showed up, a known weakness of my 4 year awesome medicine, Xalkori. Rather than use the fancy SRS I had the previous 3 times this happened, we decided to take the leap and join a clinical trial of a new ROS1 inhibitor designed to include the brain in its field of treatment, as it is designed to cross the BBB. You may recall the agonizing washout period required by the trial (and of questionable value) plus the added complication that my liver values shot into the stratosphere and forced me to be off all cancer treatment for an awful 18 days. You may recall that I happily popped those first clinical trial pills (good old RXDX-101) on December 26, 2017. You may recall that there was a huge clusterf&@$ in March when my brain MRI was misread and I was unceremoniously ejected from the trial without a follow up plan. And you may recall that I fought ...