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Showing posts from February, 2017

The Best Bad News

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I'm sure you have all been following my brain met saga with baited breath ;) so today I will bring you the latest MRI results, which are the best bad news. The MRI literally says "no definitive disease progression" and yet I am planning to have more SRS , aka brain surgery without the cutting. In order to explain how that is not crazy, let me fill in the back story. I have been taking crizotinib (Xalkori) for my ROS1+ lung cancer since November of 2013. It has been working amazingly well at controlling the cancer in my body, but it has the one big flaw that it doesn't work well in the brain. Therefore, I get regular brain MRIs to keep watch on that area. In September 2015, the first brain metastasis appeared . In October of 2015 I had SRS for that small brain met , which was successful. (Yay!) In May of 2016 I had SRS for a new small brain met , which was also successful. (Yay!) In July of 2016 I had a follow up MRI which revealed two new, tiny (1-2 mm) spots. They we...